Scoliosis is a spinal deformity that causes abnormal spinal curvatures. It can have a huge impact on your physical health, but the emotional and psychological effects are just as devastating for both the patient and their parents.
Often seen as an ‘invisible condition’, people with scoliosis can often feel isolated and misunderstood. Because of this, many people with scoliosis turn to social media for support and information about the condition. With almost 3 billion people on Facebook and Instagram alone, it’s never been easier to find support from thousands of people facing the same challenges as you. In this blog, we’ll be giving you all the information you need to get started!
Beyond A Curved Spine
If you or your child have scoliosis, there’s no need to feel isolated or frightened. You can join the world’s largest scoliosis community and learn about the different types of scoliosis and the best treatments.
You can also participate in online discussion and support groups to connect with others who understand what it’s like to live with scoliosis.
One way to manage pain and live an active lifestyle with scoliosis is to find ways to build strength and flexibility into your daily routine. This could include practicing yoga or other forms of physical activity, stretching exercises, or even swimming. By participating in these activities and making healthy choices throughout your life, you can help your curvature become less noticeable and lead a healthier, more confident life.
Approximately 20,000 patients have spinal fusion for scoliosis every year. While scoliosis is a lifetime journey for all, many of these post fusion patients have special considerations and complex conversations that only others with the complexities of spinal deformities would understand.
Best Groups For Scoliosis
-Scoliosis Warriors: A global community of support for individuals with the condition. Founded in 2010, it is the largest scoliosis community on the internet, with almost 50,000 members from more than 100 countries, but mostly from the USA, Canada, and Australia. It was created by scoliosis experts to help people in need of support with scoliosis find positive and hopeful messages and outlets for their experiences.
-Scoliosis treatment center online resource on ScoliNATION is the best place to find the best scoliosis treatment centers and providers. The “Find a scoliosis guru near you” provider directory is a comprehensive listing of doctors and clinics offering scoliosis treatment worldwide. It includes information on services, treatment types, and contact information so that you can find a scoliosis expert near you.
ScoliNATION Provider Directory: Connect with health-care providers providing scoliosis treatments.
The provider directory features scoliosis specialists and researchers who are working to develop safe and effective treatments for scoliosis. You can also read about common treatments as well as personal stories from other people who have experienced scoliosis.
-Get information from professionals dedicated to educating the public on scoliosis prevention and management. There are many resources available online to learn about scoliosis prevention, including organizations like National Scoliosis Foundation (NSF), a nonprofit organization for spinal deformities or a patient-led support group like Curvy Girls. On the research page of this website (TreatingScoliosis.com), you can learn about current research efforts as well as medical updates, and creative approaches that can help you understand the condition better.
Find a Scoliosis Group
You can find Scoliosis Warriors online by searching for the group clicking on the link, searching on Facebook, or Google search.
This online community is a great place to connect with others who have scoliosis and learn about the condition. It provides support and information to patients and their families, and advocates for better scoliosis care. You can also participate in events and discussions related to scoliosis. Plus, it’s a great way to meet other scoliosis warriors and make friends around the world.
Join Scoliosis Warriors and you can become part of the global scoliosis community. Not only will you learn about scoliosis, but you can also become involved in advocacy efforts and support other scoliosis patients. By becoming part of the Scoliosis Warriors community, you can help improve the lives of people with scoliosis, even if you have had spinal fusion surgery.
SUPPORT
Scoliosis Warriors is one of the world’s largest online support groups and Facebook community of individuals living with scoliosis. With scoliosis support groups, emotional support, and resources for patients and their families, The Warriors group helps spread public awareness about scoliosis and provides a safe space for people to share their experiences and learn from each other. This online community can help ease the physical, emotional, and financial burdens associated with scoliosis. Through support groups, patients can share practical tips and tricks for early detection, pain management, physical therapy, bracing, and even fashion tips to reduce the worst effects of scoliosis and to improve their life. Additionally, they can receive expert advice on early detection, the severe scoliosis impacts on all walks of life, as well as treatment options and lifestyle changes that can lead to improved patient care.
Scoliosis Warriors also offers a forum where members can connect with others who understand their struggles. As a community, members can share ideas for improving one’s quality of life, support each other through treatment, and share tips on how to live with scoliosis comfortably. By sharing their stories and connecting with others living with scoliosis, patients can gain valuable insight into the condition, reliable information, and achieve better wellness.
RESOURCES
Scoliosis Management and support groups are a great way to connect with other scoliosis patients and build a support network. These groups can help with the various issues that can arise with the condition, including pain, mobility, and self-esteem issues. They can provide information on treatments, exercise tips, daily encouragement, and posture modifications that can help improve the life for people living with the condition.
An online community of people can also be a source of information about local resources that can help with the management of the condition. They can provide health-care professionals with up-to-date information about treatment options and best practices. If you live in a remote area or have limited access to health care services and support can be vital to providing reliable health-related information and treatment methods. The National Scoliosis Foundation (NSF) open public forum has a robust section for patients considering spinal fusion, or post fusion complications.
COMMUNITY
A community for people living with scoliosis can be a valuable resource for information, support, and inspiration. Whether you’re just starting to learn about the condition or have experienced it for years, a community can help make your scoliosis-related journey easier. Here are some of the benefits of joining a scoliosis community:
– Connect with others who are living with scoliosis (spinal fusion or non fusion) and learn more about the condition.
– Share your experiences and struggles, get advice, and find resources all in one place.
– Stay up to date on the latest ongoing research and treatment advances.
– Find support from people who understand scoliosis back care. – Join a global network of scoliosis warriors who are working together to change lives.
We hope you can find support here. If you are joining the group for the first time, welcome and we hope you read through the description of the group before asking any questions. At the end of the day, it’s all about support and community. We hope this group helps you become a scoliosis warrior!
